Welcome to the Spinal Muscular Atrophy Community

Download the new SMA Community App

What is Spinal Muscular Atrophy?

Spinal Muscular Atrophy (SMA) is a rare genetic muscle wasting disease that is the childhood version of motor neurone disease.

The disease not only affects the muscles you see like your arms and legs, but all the muscles you can’t see, like your breathing, coughing and swallowing. SMA is a physical disability only and one’s intelligence is not affected. People go to mainstream schools, hold regular jobs, live independently, have relationships and do many things that make their lives meaningful.

If you are newly diagnosed or have just come across our page for the first time, we urge you to get involved, and join the SMA community.

Introducing the SMA Community App

The SMA Community App has been developed to help you connect, share and engage with like-minded individuals, families and specialist.

  • Find other community members in your area

  • Ask questions about a new diagnosis

  • Engage with other bereaved families

The SMA Community App also provides:

  • The Latest News and Resources

  • Information on Upcoming Events

  • Exclusive App Videos and Podcasts

Stay up to date and start engaging with the SMA Community by downloading the App

WHAT IS A COUGH ASSIST MACHINE

The Cough Assist Machine helps to clear secretions from the lungs by helping you with your breathing. When you breathe in (inspiration), the machine gives you air (positive pressure) to help expand your lungs. When you blow out (expiration), the machine creates a sucking force (negative pressure) that pulls the air out of your lungs. This rapid change in pressure during the different phases of breathing (inspiration and expiration) helps make your cough stronger and more effective.

To learn more about Cough Assist Program:
Visit SMA Australia Website

Download the Cough Assist requirements